Children's Arthritis Network
In 1996, the Children’s Arthritis Network (CAN) was established to
focus on the specific problems related to arthritis in children. This collaborative
effort was formed to serve children with arthritis and rheumatic diseases,
their parents and health professionals who are entrusted with their care.
The Children’s Arthritis Network was established through the generosity
of the Heinz Family Foundation and continues to exist because of funding
and coordination now being provided by the Eastern Pennsylvania Chapter of
the Arthritis Foundation. It is the only statewide comprehensive network
of care for children with rheumatic diseases in America. Its members are
parents, family members, doctors, nurses, occupational and physical therapists,
social workers, young adults and anyone with an interest in arthritis in
young people.
Pediatric Rheumatologists from tertiary care centers operate five CAN outreach
clinics to serve children in the cities of Bethlehem, State College, Wilkes-Barre,
Lancaster and York, PA. These clinics provide care to families who would
otherwise have to travel 2 to 4 hours to see a Pediatric Rheumatologist.
With the development of the outreach clinics, children receive care closer
to home, and care closer to home means that therapy and special school services
are coordinated and provided in their communities.
The Children’s Arthritis Network also encompasses education programs
for families including Camp JRA (Juveniles Reaching Achievement), Family
Days, Teen Service Projects, Pen Pal Programs, a Holiday Party, Juvenile
Arthritis Awareness Week, and Reunion Programs. Additionally, the Children’s
Arthritis Network serves as a clearinghouse of information for the public
on topics from medications and educational rights, to social services and
legislative issues. Materials include an annual newsletter, newly diagnosed
family packets, free brochures, self-help manuals and educational materials
for families, teachers and school nurses.
(http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=18)
